Rare Neuromuscular Disease for Susan

That’s what her PCP said, “A rare neuromuscular disease”.  Beyond that he doesn’t know.

Waiting it so hard.  So is being patient when you want to scream, “What is taking so long?”  We are waiting for an appointment for Donna at a neuromuscular clinic and with a certain doctor who is supposed to be ‘the best’.  Susan’s primary care provider said that there is no way to get her in more quickly.  Sigh.

Please pray for her.  As we wait, her body continues to deteriorate.  She is almost completely wheelchair bound now. Pray that she will look to God for physical, emotional, and spiritual strength.

Pray for us as sisters.  We need to be wise as we advocate for Susan.

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